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Living with rare genetic disorders: Challenges of EPP and XLP
Kirstine Juhl Belongie discusses the impact, symptoms, and possible treatments related to EPP and XLP, two debilitating disorders that cause extreme pain following exposure to sunlight.
Getting leptospirosis onto the lists of neglected tropical diseases
Leptospirosis is a globally important infectious disease, but neglected to the extent that it’s not on WHO’s or FDA’s neglected tropical diseases lists; this needs to change.
Overcoming obstacles in rare disease clinical trials
With an urgent need to develop new treatments for people with rare diseases, the University of Birmingham’s Professor Timothy Barrett explains how a new consortium will provide a step change in the delivery of rare disease clinical trials.
The role of microbial diversity in microbial electrosynthesis
Bacteria are often painted as the enemy of humanity. Before the discovery of antibiotics, a wound getting infected was frequently a death sentence.
Wicked-Schisto: The wicked public health problem of Schistosomiasis and the interdisciplinary research helping to...
Poppy Lamberton, Professor of Global Health at the University of Glasgow, is leading an interdisciplinary team aiming to identify cost-effective, sustainable interventions for schistosomiasis, a devastating neglected tropical disease.
Enhancing community-based disease surveillance using Afyadata in Mozambique
SACIDS, in collaboration with the Ministry of Health in Mozambique is capitalizing on its AfyaData, a digital disease surveillance app, to enhance early detection, timely reporting and prompt feedback/response to health-related signals/events, including COVID-19 and other priority diseases in the country.
The threat of viral haemorrhagic fevers in Tanzania
Sima Rugarabamu from the SACIDS Foundation for One Health, Sokoine University of Agriculture, Tanzania details the new understanding of viral haemorrhagic fevers in Tanzania.
Improving the quality of life for people with brittle bone disease: Osteogenesis Imperfecta
Pascale V Guillot, at the University College London, looks toward improving the quality of life for those with Osteogenesis imperfecta, a chronic health condition called brittle bone disease.
