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Common data elements to advance ME/CFS research
Standardizing data collection in ME/CFS research through Common Data Elements is a crucial step toward improving diagnosis, advancing treatments, and fostering collaboration across studies to accelerate progress in understanding this complex disease.
RTI International – independent, nonprofit research institute
RTI International is an independent, nonprofit research institute whose vision is to address the world's most critical problems with science-based solutions in pursuit of a better future.
Data and specimen-sharing tools offer new discovery opportunities for ME/CFS researchers
Within the field of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) research, two online tools: mapMECFS (Mathur and Carnes, 2021) and searchMECFS play a crucial role in advancing the understanding of ME/CFS by encouraging researchers to share and use data and biospecimens that are stored in centralized and easily accessible data portals.
